Cam is finally looking hot

Posted on September 28th, 2007 by Cam.
Categories: Let's talk.

I got discharged from hospital yesterday after a week of testing, or should I say, a testing week. Not before picking up some kind of virus that has sent my temperature to the 38-39.5 range, causing severe headaches and mixed messages to my body. One minute I am in bed with a 39.5 degree temperature, shivering uncontrollably. Then I am trying to get cool again with ice-packs all over while dripping with sweat. At least I am home, and I am thankful for that.

I won’t write much tonight or probably for the next few days if I continue feeling this way. Very difficult to do anything at the moment, just because of the virus.

I will write in more detail later, but I was discharged after the consultants (Haematology, Oncology, Orthopaedics) agreed my hip was ok to walk on. The Haematology specialist that gave us the chat the other night outlining the severity of my diagnosis came back in the morning and said, “This is a very tricky case”. He said it with enough expression on his face that he had better news to follow. The expected diagnosis that we had received from 4 or 5 Doctors was now unconfirmed in the hip. It seems that my hip should be OK in 2 weeks with partial-weight-bearing with the frame or crutches – no surgery needed!

The ‘but’ is that the report said they have located 2 other suspicious areas, one on my rib and the other on my pelvis. According to the report, the one on the pelvis most likely represents another plasmacytoma (as is in my sternum). I will be having further tests over these next few weeks to work out what is going on. Chemotherapy has been put on hold until we know what is going on.

This has been the second time we have been through this process of having “The Chat” and then been told better news. You can understand that we are emotionally exhausted. Good to be home.

We now understand that this is the nature of this particular cancer. It is very difficult to find as it is so patchy, it can be in your bones but remain undetected, and it can be confusing at the best of times to get definite answers on. My belief about the end results haven’t really changed, it is just that the journey through it may get a bit rougher than we previously anticipated.

I may be out of action for the next couple of days until I shake this virus.

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