Cam is finally looking hot

Posted on September 28th, 2007 by Cam.
Categories: Let's talk.

I got discharged from hospital yesterday after a week of testing, or should I say, a testing week. Not before picking up some kind of virus that has sent my temperature to the 38-39.5 range, causing severe headaches and mixed messages to my body. One minute I am in bed with a 39.5 degree temperature, shivering uncontrollably. Then I am trying to get cool again with ice-packs all over while dripping with sweat. At least I am home, and I am thankful for that.

I won’t write much tonight or probably for the next few days if I continue feeling this way. Very difficult to do anything at the moment, just because of the virus.

I will write in more detail later, but I was discharged after the consultants (Haematology, Oncology, Orthopaedics) agreed my hip was ok to walk on. The Haematology specialist that gave us the chat the other night outlining the severity of my diagnosis came back in the morning and said, “This is a very tricky case”. He said it with enough expression on his face that he had better news to follow. The expected diagnosis that we had received from 4 or 5 Doctors was now unconfirmed in the hip. It seems that my hip should be OK in 2 weeks with partial-weight-bearing with the frame or crutches – no surgery needed!

The ‘but’ is that the report said they have located 2 other suspicious areas, one on my rib and the other on my pelvis. According to the report, the one on the pelvis most likely represents another plasmacytoma (as is in my sternum). I will be having further tests over these next few weeks to work out what is going on. Chemotherapy has been put on hold until we know what is going on.

This has been the second time we have been through this process of having “The Chat” and then been told better news. You can understand that we are emotionally exhausted. Good to be home.

We now understand that this is the nature of this particular cancer. It is very difficult to find as it is so patchy, it can be in your bones but remain undetected, and it can be confusing at the best of times to get definite answers on. My belief about the end results haven’t really changed, it is just that the journey through it may get a bit rougher than we previously anticipated.

I may be out of action for the next couple of days until I shake this virus.

10 comments.

Matty C

Comment on September 28th, 2007.

Good to hear you’re able to enjoy some time at home Cam, and that you’re able to put some weight on your leg again. You’ll have it stomping all over the bass pedal in no time :) Hope you shake the virus real soon mate. Praying for you and thinking of you both.
Peace brother.

Matty Cooper

Robyn, Phil & Duncan

Comment on September 28th, 2007.

Hey Cam, good to hear you are home. Enjoy the weekend, the weather will be fabulous.

Big hugs,

Robyn, Phil & Duncan-guess who just got braces!

Cons

Comment on September 28th, 2007.

Cam your ‘virus’ sounds suspiciously like menopause…. Cam, i think every time you post i get more and more confused but i think thats the point right? Looking forward to catching up soon, i have been in the running for worst mother of the year award as i don’t exactly know what i am doing, but i am getting a bit better and thus a bit mobile so i will see you soon. I love coming onto your site though, so thanks for keeping it up. Love you lots Cam, praying for you lots as well. Sending my love to you and liz xx

Katie

Comment on September 29th, 2007.

We’re still with you. xkt & m

paul & pip perrella

Comment on September 30th, 2007.

Hi Cam,
We finally made it over to Holland and you are with us on our trip. We’ve been out of touch with whats happening with you and Elisabeth, but we’ve been wondering how things have transpired since the initial news.
I’ve just read what you’ve been upto as we’ve been without email and It feels like we’ve been hit with a sledgehammer.
We’ll be eagerly following your progress and sure are grateful for this technology, sure beats pen and paper doesn’t it? You’re in our thoughts and prayers.
Love from Holland, the Perrella’s

Pam

Comment on September 30th, 2007.

Cam and Elizabeth
Loving you very much. Praying, trusting.

Pam R.

Judy Moore

Comment on September 30th, 2007.

Continuing to pray for you and Liz. Judy Moore

cousin sal

Comment on October 1st, 2007.

Hi Cam and Liz,
seems like you guys are on one seriously scary roller coaster ride, at least you will save money by not going to the Royal Show this year.

On a more serious note, we too have been following the walk, with Mum (Aunty Nola) also keeping us informed of the sometimes more than daily changes to your diagnosis. We are ready to get out the walking frames and crutches in order to stay beside you if need be.

I too am looking for something profound to say, but I’m not very good at that so I will just say that the most profound things I know of are God’s love for us and the power of prayer. It’s great to see the strength you both have through Him, that He is lifting you up when the roller coaster throws you down (beats you up, turns the world upside down etc..). So just to let you know we are praying for you too, and laughing at the stuff you post here (the funny bits of course); you’re a crazy man.

Keep your seat belts on and hold on tight.

our love, thoughts and prayers,
Sally, Stefan, Emily and Stephanie

Susan G

Comment on October 2nd, 2007.

Hi Cam, I am a friend of a friend of your mums who has introduced me to your site tonight.I have been eagerly reading your diary as my sister is on a similar journey.Hope your virus has eased and your temperature is normal.I have just been to see the fireworks at the Royal show, gratis. (from outside the fence). I am a Reiki master so I will be sending you healing energy from now on. All good wishes on your walk. Susan.

simon parnell

Comment on October 3rd, 2007.

Hey Cam, I spoke with your mum at the wedding on Sunday and she filled me in with some details of your illness. I just wanted to let you know that I have been in prayer for you and hope you encounter deep pleasures, strength and Grace in Christ during this time.
simon…

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