What comes next

Posted on May 8th, 2008 by Cam.
Categories: Let's talk.

We have decisions to make. That’s what is next. I’ll get to that later.

Today we were back at the clinic for a blood check and chat with specialist Brad about what comes next. My bloods are doing well. Everything that needs to come up is coming up, and everything that needs to come down, is settling. My time back home has been good in that I have only had one vomiting episode yesterday morning and have been feeling fine generally. My neck/headache has been a concern and last night it almost rendered me immobile, as the pain was so great.

It seems each day is only going to be pretty short as the afternoons are spent sleeping. I have just woken up from a three-hour sleep this afternoon and yesterday was not much different. My body always feels like it needs it. There is never a time when I feel I have overslept. Wonderful. My legs have lost most of their strength. A short walk here or there warrants a big rest (can’t get more specific than that).

We had to talk about two main things today with Brad – what next, and kids. The ‘what next’ aspect affects the ‘kids’ issue and it will take some thinking through. There is a drug called Thalidomide that has been proven beneficial as a consolidation treatment to stem-cell transplant treatment. The plan would be to go onto this drug for 12 months to make this treatment as effective as possible, according to current research. Most of you would know about the negative connotations associated with Thalidomide being the morning sickness drug that caused birth defects some decades ago. It can be a nasty drug, but like I say, it has shown beneficial outcomes for people in my situation.

If we choose this road, we would need to sign a stat-dec saying that we are using at least two forms of contraception. According to the drug company, we cannot take the risk of becoming pregnant while on this drug. So our decision involves whether to have this treatment for 12 months, or to start trying for kids as soon as possible. I know it is a decision that only we can make, but it is another one where faith, facts and feelings play a huge part. We have a couple of weeks to decide.

I will be having a full-body PET scan in a few weeks also to see if anything of concern shows up. Brad was very pleased with my progress, and he has been very sensitive and understanding with our required decisions. People can be heroes for one of many different reasons. He is one of mine for many reasons. When your life is medically in the hands of someone who has dedicated such a big part of their life to making folk like me well, I can’t help but be in awe of their commitment. When they go over and above their call or duty as Brad often does, their input into a life becomes more valuable than words could ever say, something that can never be repaid.

I could say the same for the nursing staff I have had. There is something about being at one’s most vulnerable state and being looked after so well that can bring depth to the word ‘gratitude’.

As of 4pm, sister Rachel is in labour and all is progressing well. We’ll be meeting and celebrating the arrival of our latest family member later tonight.

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Libs and I after a bit of a trim.

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Nurse Sarah taking out my CVC- a brilliant job.

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What the CVC (Central Venous Catheter) looks like.

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Where it has been hanging out for the last 3 weeks, quite uncomfortably.

6 comments.

Karyn

Comment on May 8th, 2008.

is it just me or are you even better looking without hair?! Glad you’re back home and enjoying (expanding) family stuff :)

muffin man's revenge

Comment on May 8th, 2008.

Cam, you look simply mahvelous!!! You’re wife is rather nice lookin as well:) At least now you have an excuse to go to sleep after some lovie dovie. Things are going to work out how they are supposed to. Congrats on the new addition to your family. love and prayers

Toddy

Comment on May 8th, 2008.

Well, you’ve presented the issue… can I ask what you’re feeling in relation to possible answers? I imagine that there are pros and cons to each possibility, that will depend on you guys as a couple, the specifics of your treatment and ramifications and consequences of ‘what-if’s'…

I always reckon that these types of processes normally come down to a series of alternate questions.

Cons

Comment on May 8th, 2008.

Cam you look great! You really do. As for decisions, no matter what the outcome you will be blessed with children, whether they are yours or your nieces and nephews. My niece looks more like me than Matthew!! The decision you and Elizabeth make in the end will be the right one. Xx

Jacqui=D

Comment on May 9th, 2008.

Hey Mr Harris=D
Jacqui (2004 year seven)currently we are sitting in english with Mr Marlow teaching us hahahaha thats crazy ay=D well we are in year eleven and were thinking about you the other day. and thinking how much you impacted our lives and are an imspiration to a lot of us. so we were wondering if we could maybe catchup with you only if your free and willing andi hoppe your not thinking we are some physco crazy people trying to stalk you =D so when you get this let me here from you God bless

much love and happiness
Jacqui and Layla=D

p.s. we are both posting you comments so you don’t forget to reply=D only if you have time:)

Beth

Comment on May 9th, 2008.

When is a person ever a mistake?
Planned or not, welcomed or not, each of us is meant to be here.
God knows we were no accident – truly, the same for any child yet to be born.
If God knows his/her name, then he/she will be here one day.

We have little control over the length of life (an hour or a century) but as we are privileged to conceive and nurture a new individual, understand that it will go into eternity – a new person who was NOT before, now IS, and forever. Regardless of the length of life, it is significant and has purpose.

You cannot undo creation of new life even if the life is brief. God only made Adam and Eve (in the literal sense). The rest of humanity comes through men and women, and we have the privilege of helping God perform his greatest miracle.

Is it right in different circumstances to choose? I used to think so, but in any case, God’s voice to your heart will be your guide, though the road may not be easy in either direction. His promise is that He will be with us.

Warmest thoughts

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