The next step

Posted on August 29th, 2008 by Cam.
Categories: Let's talk.

What a morning. Remission, or what we thought may have been remission, has ended. It is probably a helpful thing from this point to not use the word ‘remission’ as it is just a bit confusing with such a difficult cancer.

Dr Brad is certain that the myeloma has returned as a solitary cytoma, but I will be having a biopsy under CT next week to confirm that. It will also give us information about what kinds of treatments will be most effective down the line.

Everything is moving swiftly. Straight after seeing Dr Brad, we went to see Dr Mandy, who was my Radiation Oncologist last time. She was pretty disappointed to see us back, but what can you do? She interpreted the CT’s that were taken yesterday for us. The tumor is in the soft tissue between the lungs, pushing on them and the aorta. This explains the breathlessness and chest pains over the last few weeks. I will be having another CT Monday at the hospital to so they can plan the radio regime. It will be five weeks again, starting as soon as the planning is complete.

I will begin back on steroids and some other drugs fairly soon. I can understand the response of “If it didn’t work last time, why go down this track again?” – it is a thought that has crossed my mind more than once. At this point, the tumor needs to be reduced in size, at least to give me more comfort. It will also provide time to consider other options. But for now, it is once again time to act quickly.

We are going ok, and our approach is to stick to things we have planned as much as possible. We have tried to maintain a calm acceptance of this news, although it has been quite unexpected and disappointing.

I am very mindful that I have some dear friends who are going through tough treatments at this time too. I am sure they are as thankful as I am for the people who support us. I could never convey how much it means, but thank you.

17 comments.

The Stalker

Comment on August 29th, 2008.

Hi Cam and Elizabeth,

My thoughts have been with you over the past 24 hours and i truly feel for you.
The two of you together have amazing strength and i know you will continue your journey as determined as ever.

Nicole

Erica Taylor

Comment on August 29th, 2008.

Thinking of you. I know I don’t often comment on this wall but I am always checking up on what’s happening and thinking of you both. It must be so difficult to go through all this and to be so incredibly strong. It’s so inspiring and I hope the next stage of treatment can relieve some of your discomfort. Lots of Love from Erica.

Rory shiner

Comment on August 29th, 2008.

This is not good. Just got a text from Carmel and so came on to see what was going down. Praying as always….

martin and liz

Comment on August 29th, 2008.

We are thinking of you both and will conitnue ‘to walk beside’ you with prayer, love, encouragement and anything you think you may need. just let us know. God bless love martin and liz

joke

Comment on August 29th, 2008.

Hi Cam it’s Anne’s mum here, we met once at chemo club. Just want to let you know i am thinking of you and wish you and your family a a lot of strength for the time ahead
with love Joke

hamo

Comment on August 29th, 2008.

You were on my mind today. I know enough to be aware that you have had very bad news.

I won’t tell you that I pray for you often – because i don’t… but I do think of you and occasionally pray and appreciate your thoughts on here.

Keep going mate

Rob L

Comment on August 29th, 2008.

9And this is my prayer: that your love may abound more and more in knowledge and depth of insight, 10so that you may be able to discern what is best and may be pure and blameless until the day of Christ, 11filled with the fruit of righteousness that comes through Jesus Christ—to the glory and praise of God.
(God’s words, not mine. But I couldn’t have said it better.)

Amanda

Comment on August 30th, 2008.

Oh, Cam, I am so sorry. You have been on my mind and in my prayers lots this summer, and you will continue to be. I loved Jamie’s story about Lydia… it seems there is such power in children’s prayers. I promise I will get my little boys on the prayer chain next!

Guy in the white suit

Comment on August 30th, 2008.

No great words of wisdom coming to my mind Cam. I’m not quite sure if there is anything I can say other than we are praying.

You’re on my mind today. Love you guys and we are still walking beside.

Greg and Elizabeth

Comment on August 30th, 2008.

Our love and prayers to you both. You are constantly in our thoughts and prayers.

Cam

Comment on August 30th, 2008.

I realise it is difficult to know what to say, as I am finding it really difficult to know what to say back to you all, but I’m deeply grateful.

In many ways, nothing has changed. The hope remains the same, and will remain the same until I am 70 years old (hopefully). Just the stuff that goes on in between may change from time to time. This one just caught us unaware.

Janice

Comment on August 30th, 2008.

WE’ve been walking beside praying along with everone else.We can’t be outdone by India so we will get all of China praying too. Love R+J

Holly and Wade

Comment on August 31st, 2008.

We are so sad to hear about your news. You told Wade on his site that you thought he was “one of the bravest people you know”, well we think you are pretty brave yourself. Keep up the fight and stay strong! Our prayers are with you!

Tim W

Comment on August 31st, 2008.

Hey Cam – just read your news. I was just reading Wikipedia’s entry on Mr T as well. Did you know he was diagnosed with lymphoma in 1995? I didn’t know that. (And that he was Mohammed Ali and George Foreman’s bodyguard – (and that George Foreman was a boxer – and I thought that he just made whitegoods!)) Anyway….

In Mr T’s words at beliefnet dot com:
‘Job said, “Still you slay me, and yet I trust you.’ As I’m going through things, if I didn’t read the book of Job I guess I would have fallen apart. I could have said, ‘What kind of God does this and that?’ But no, I understood Job, I read it. I know what he went through. His friends and his wife came and said, ‘You’re a fool. You leave God alone.’ And he said, ‘No woman, you speak like a fool.’

The story of Job gave me strength when I had cancer. I said, ‘T, if you just hang in there, God will give you double for your troubles.” That’s what I was taught in church and that’s what happened to Job.’”

I note he managed to find verses that had the word ‘fool’ in it.

Cam, you’re the modern day Mr T – doing it tough but I’m prayin that God will heal you and give you double for your troubles!

Love Tim & Edith Wilson

Jenny & Tim Gregory

Comment on August 31st, 2008.

Hi Cam & Elizabeth, Gee Whizz. We pray that like Job you are always conscious of the Lord’s prescence to see you through this tough time.
Love Tim & Jenny Gregory. We are having R & R with Jonathan & Sonia, Cammie & Alana in Christchurch N.Z. Cold,but bright & sunny today.

Spanna

Comment on August 31st, 2008.

Bugger!

This is not the news that any of us have been wanting to hear. It seems to have been one of those weeks really!

I guess we just have to remind ourselves that God is bigger than all this, and that he really is able. Like you, I just want to see a little action about now.

Thinking of you, praying for you, and hoping “we” hit that pot of gold at the end of the rainbow any day now!

Toddy

Comment on September 3rd, 2008.

Tim, that was brilliant.
Cam, that sucks.
(Cam, you are brilliant – I was referring to your news.)

Man o man… just when you think that you’ve got a new chapter to plan, you get given a ‘repeat’ mark in red on the previous work you’ve done.

Video killed the radio star, but radio killed the little bug in your chest once – lets be looking for a repeat of that, with some knock-out blows at the end.

I might watch a Rocky movie for you. It just seems appropriate this week.

Catcha soon,
Mr T(oddy)

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