Still on my mind

Posted on May 30th, 2009 by Cam.
Categories: Let's talk.

I have had a few scans this week. One was a CT scan on Tuesday, and the other was a PET scan yesterday. Not much to report at this stage, aside from the fact I had the misfortune of meeting a very rude nurse manager in Radiography. Thankfully, this is an isolated case and I am sure if I run into her again I will be giving her a piece of my mind, but just the cancerous part. I need the rest.

The bump has continued to grow in the last week or so. The headache is constant but not debilitating. I am wondering just how much this thing is getting the chance to spread during all this testing phase. I still have another MRI to go through next week.

Apart from that, I am quite at peace about the whole thing. It is not keeping me awake at night and I am continuing working and doing normal things during the week. That is the goal, to continue doing so.

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This week

Posted on May 23rd, 2009 by Cam.
Categories: Let's talk.

This past week has been a mix of trying to keep a mix of normal life and having to tend to medical things.

I saw the radio-oncologist on Tuesday. I have had a few chats with her before when it looked like the worst case scenario had happened, so she said she will save me ‘the talk’. I’ve heard it all before, numerous times. If we do go down the line of radiotherapy, the main side effect would be the loss of hair. As the lesion is on the crown of my head, it would leave me looking like Friar Tuck. This would have come in handy if my desire was to be considered for the monastery, but that is not on the cards at the moment, so I guess my shaved head will be the look of choice from now on. I can only imagine that a decision like this for women holds far greater concerns.

I had an appointment with Dr Brad yesterday. The blood results are now indicating an increasing level of light chains (Kappa) in the blood. These could be from the head lesion alone or from other sites in my body. We don’t know yet, and we probably won’t until my scans are done. I am having 3 whole-body scans. One PET, one CT and one MRI. The chemo regime of choice at this point is Lenolidomide with Dexamethosone steroids.

The lump on my head is not really noticeable to most, as it is under my hair, but noticeable to me as it is like someone has inserted half a golf ball under my scalp.

Testing for stem-cell matches should happen this week coming.

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Something on my mind.

Posted on May 15th, 2009 by Cam.
Categories: Let's talk.

I would have been happy not to do another entry here, at least for another 10 years. After a sub-substantial break, my writer’s block has come to an end.

A lot has happened in the time since I last posted anything on here. I will just keep this brief for now and update the cancer side of things for this time.

Physically, I have been feeling really well and have been enjoying renewed energy, getting back into work and trying to maintain good health. A couple of months ago, a bump appeared on the crown of my head where a lesion was last year. It grew slowly but worried me enough to get it tested. The results came back all clear, so we waited for the bump to go down. Well, it didn’t go down so I asked to have it checked again last Friday. It had become quite large (like half a golf ball under my skin). The results came back positive this time for plasmacytoma so I will be beginning another few weeks of testing, planning, discussions and decision-making and starting treatment again.

As far as we know, the lesion is not in my brain, but just on the skull. As far as we know, there is not other evidence of other lesions. As far as we know, my bloods remain normal – a good sign. It looks as though the most likely treatment will be radiotherapy with chemo. I am reluctant to have radiation to my head. It’s not a pleasant experience, as far as I know.

I am in good spirits, although the news was initially quite difficult. I am not sure how things will progress from here at this point so I have nothing really more to say for now, but I guess I just wanted to officially be here to welcome you back. I’d feel like I was being a bad host otherwise.

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