This week

Posted on May 23rd, 2009 by Cam.
Categories: Let's talk.

This past week has been a mix of trying to keep a mix of normal life and having to tend to medical things.

I saw the radio-oncologist on Tuesday. I have had a few chats with her before when it looked like the worst case scenario had happened, so she said she will save me ‘the talk’. I’ve heard it all before, numerous times. If we do go down the line of radiotherapy, the main side effect would be the loss of hair. As the lesion is on the crown of my head, it would leave me looking like Friar Tuck. This would have come in handy if my desire was to be considered for the monastery, but that is not on the cards at the moment, so I guess my shaved head will be the look of choice from now on. I can only imagine that a decision like this for women holds far greater concerns.

I had an appointment with Dr Brad yesterday. The blood results are now indicating an increasing level of light chains (Kappa) in the blood. These could be from the head lesion alone or from other sites in my body. We don’t know yet, and we probably won’t until my scans are done. I am having 3 whole-body scans. One PET, one CT and one MRI. The chemo regime of choice at this point is Lenolidomide with Dexamethosone steroids.

The lump on my head is not really noticeable to most, as it is under my hair, but noticeable to me as it is like someone has inserted half a golf ball under my scalp.

Testing for stem-cell matches should happen this week coming.