The trials

Posted on January 26th, 2011 by Cam.
Categories: Let's talk.

Yesterday Ash and I went to the hospital to find out what they have planned. Dr Dijan, who is Dr Brad’s number 2, spent a great amount of time with us as he explained what will be happening from now.
The PET scan results we saw yesterday indicated that the myeloma is back in my legs, collarbone, as well as the along the spine, ribs and sternum. It has spread too much to just hit with radiotherapy.

From now, I will be trying to qualify for a hospital based trail where I can access the drug Velcade that kept me going for a good part of last year and the year before. It is too expensive for long term, but the hospital will be paying for me to stay on it for 6 months to a year. To qualify, the disease needs to be present in blood and urine, I have to have had 3 lines of treatment (check) as well as a host of other criteria. Considering the rate and spread of my disease at this time, it seems that I will qualify fairly easily. I was hoping to not qualify, as this trial at this point is the last line of treatment we have that we know I am responsive to.

I am glad that I possibly get a year or so, but the last time I was on this drug I remember having the realisation that this drug was not making me better, it was just keeping me alive to get to the hospital for the next treatment. Disheartening.

Now things have changed somewhat. Ash and I are still running around planning a wedding, we are getting the house ready for visitors for the wedding and dealing with the health stuff on top of that. If it was just ‘stuff’ to organise, it would be manageable. But it is the other ‘stuff’ in life that breaks our backs, our strength, our resilience and our joy. These are the trials that make the hospital based trials a walk in the park.

2 comments.

sojourner

Comment on January 26th, 2011.

“Save me, God, for the water has risen to my neck!” Psalm 69:1

sally mischke

Comment on January 28th, 2011.

Hi Cam,
Usually I hear how you are doing second hand. Sorry you have had to change your wedding plans. Selfishly I am thinking this means immobile west aussie cousins like me will now be able to be there! I hope at least some of the dream can be realized with the venues here. As usual just know there are heaps of people out here praying for you, Ash, the treatment, the wedding and the future. Thoughts and prayers from Sally

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